Thursday, February 7, 2013

Fearfully and Wonderfully Made

by Lexi at Mostly True Stuff


Abby’s pretty much a rock star when we go out. People go out of their way to tell me how cute she is, to talk to her, to be close to her. I love this. Most people see her and think she’s beautiful- and not in spite of her Down syndrome. Abby is beautiful.

There have been a few times where people haven’t been so kind. I’ve written about it before. Most of the time, people don’t mean harm. They come from a generation that thought differently about people with Down syndrome, or they have their own preconceived notions about the ‘burden’ my daughter is on society and me. Sometimes they pity me.

When you get into the clinical description of Trisomy 21 (Down syndrome) you hear words like, “mutation” and “abnormal.” These words aren’t meant to hurt, they are meant to describe. There are other words that usually aren’t meant to hurt, but are still too often used in society at large. I’ve heard a few people use the word “mongoloid” to describe my daughter, a few have used the word “retarded” (in the clinical setting, speaking of specific issues of growth and development, this doesn’t irk me the way it does when I hear people use it to describe HER or in using it in ANY OTHER WAY).

Abby was made this way. She is not a mistake. She is not a mongoloid. She is my daughter. And I’m grateful for every bit of her- extra chromosome included.

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